Summary
The Genetics Clinic of the Future (GCOF) project aims to ensure that the clinical implementation of genome technologies is relevant and responsive to the needs of all. It offers a stepping stone approach towards the genetics clinic of the future, engaging all stakeholders involved in a process of mutual learning and information exchange.
The GCOF project implements key Science with and for Society issues, ensuring that ethical reflection and stakeholder involvement do not occur in parallel, but are effectively integrated in the core of the project. It establishes a robust communication and implementation strategy that integrates the project’s outcomes and recommendations in research and clinical practices and policy processes, outlining opportunities for a more responsive health research and innovation system by:
1. Envisioning the Genetics Clinic of the Future (WP1)
2. Mapping out the concept of data control (WP2)
3. Considering ethical and legal dimensions in the consent framework (WP3)
4. Exploring novel models for use of clinical data in research and vice versa (WP4)
5. Initiating public engagement, mutual learning and dissemination (WP5)
6. Engaging policy makers (WP6)
The consortium brings together 12 key partners from 10 countries across Europe who represent the breadth of stakeholders involved in the genetics clinic of the future: genomics research, clinical genetics, bioinformatics, public health, policy making, patient representation, education, commercial genetics and bioinformatics services, social research, communication, responsible innovation and ethics and law. The GCOF project connects to the major EU-initiatives in the field of personalised health and care. The consortium also represents a variety of organisation types, including research organisations, businesses, policy makers, civil society organisations, education establishments and science & society centres.
The GCOF project implements key Science with and for Society issues, ensuring that ethical reflection and stakeholder involvement do not occur in parallel, but are effectively integrated in the core of the project. It establishes a robust communication and implementation strategy that integrates the project’s outcomes and recommendations in research and clinical practices and policy processes, outlining opportunities for a more responsive health research and innovation system by:
1. Envisioning the Genetics Clinic of the Future (WP1)
2. Mapping out the concept of data control (WP2)
3. Considering ethical and legal dimensions in the consent framework (WP3)
4. Exploring novel models for use of clinical data in research and vice versa (WP4)
5. Initiating public engagement, mutual learning and dissemination (WP5)
6. Engaging policy makers (WP6)
The consortium brings together 12 key partners from 10 countries across Europe who represent the breadth of stakeholders involved in the genetics clinic of the future: genomics research, clinical genetics, bioinformatics, public health, policy making, patient representation, education, commercial genetics and bioinformatics services, social research, communication, responsible innovation and ethics and law. The GCOF project connects to the major EU-initiatives in the field of personalised health and care. The consortium also represents a variety of organisation types, including research organisations, businesses, policy makers, civil society organisations, education establishments and science & society centres.
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More information & hyperlinks
| Web resources: | https://cordis.europa.eu/project/id/643439 |
| Start date: | 01-01-2015 |
| End date: | 30-06-2017 |
| Total budget - Public funding: | 1 195 106,25 Euro - 1 195 106,00 Euro |
Cordis data
Original description
The Genetics Clinic of the Future (GCOF) project aims to ensure that the clinical implementation of genome technologies is relevant and responsive to the needs of all. It offers a stepping stone approach towards the genetics clinic of the future, engaging all stakeholders involved in a process of mutual learning and information exchange.The GCOF project implements key Science with and for Society issues, ensuring that ethical reflection and stakeholder involvement do not occur in parallel, but are effectively integrated in the core of the project. It establishes a robust communication and implementation strategy that integrates the project’s outcomes and recommendations in research and clinical practices and policy processes, outlining opportunities for a more responsive health research and innovation system by:
1. Envisioning the Genetics Clinic of the Future (WP1)
2. Mapping out the concept of data control (WP2)
3. Considering ethical and legal dimensions in the consent framework (WP3)
4. Exploring novel models for use of clinical data in research and vice versa (WP4)
5. Initiating public engagement, mutual learning and dissemination (WP5)
6. Engaging policy makers (WP6)
The consortium brings together 12 key partners from 10 countries across Europe who represent the breadth of stakeholders involved in the genetics clinic of the future: genomics research, clinical genetics, bioinformatics, public health, policy making, patient representation, education, commercial genetics and bioinformatics services, social research, communication, responsible innovation and ethics and law. The GCOF project connects to the major EU-initiatives in the field of personalised health and care. The consortium also represents a variety of organisation types, including research organisations, businesses, policy makers, civil society organisations, education establishments and science & society centres.
Status
CLOSEDCall topic
HCO-15-2014Update Date
26-10-2022
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Organisations
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| UNIVERSITAIR MEDISCH CENTRUM UTRECHT (Coördinator)
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| AGILENT TECHNOLOGIES BELGIUM NV
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| BIO.LOGIS GENETIC INFORMATION MANAGEMENT GMBH
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| EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION
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| INSTITUTET FOR FREMTIDSFORSKNING FORENING
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| OBSERVA ASSOCIAZIONE
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| OPEN SCIENCE - LEBENSWISSENSCHAFTENIM DIALOG VEREIN
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| SCHUURBIERS DANIEL
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| TERVEYDEN JA HYVINVOINNIN LAITOS
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| THE CHANCELLOR, MASTERS AND SCHOLARS OF THE UNIVERSITY OF OXFORD
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| UNIVERSIDADE NOVA DE LISBOA (NSPH)
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| UNIVERSITY OF LEICESTER