Model consent clauses for rare disease research

Summary

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Authors: Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, Anne Marie Tassé, Durhane Wong-Rieger, Bartha Maria Knoppers

Journal title: BMC Medical Ethics

Journal number: 20/1

Journal publisher: BioMed Central

Published year: 2019

DOI identifier: 10.1186/s12910-019-0390-x

ISSN: 1472-6939