Data Management Plan

The document, delivered at month 6 and eventually updated during the overall project duration, will outline how data collected will be handled as part of the project (e.g. as regards patient data management during pilots) and after project completion (e.g. as regards data sharing towards the main scientific community for further exploitation). First of all, it will describe what data will be collected / generated as part of project activities, following what methodology and standards, whether and how this data will be shared, and now it will be curated and preserved. Therefore, this Deliverable will establish policies and rules – both organizational and from an IT perspective - regulating how data will be shared, at what disclosure levels, through which tools/secure communication channels, in which formats and following which security and privacy standards (this will include e.g. encryption and anonymization policies, data protection tools, systems’ users’ rights,…). Then, it will describe what procedures will be pursued aiming to provide access to data to third parties outside the consortium and the scientific community. This will include, for example, which datasets should be disclosed or not, how data will be made accessible, which scientific channels and stakeholders should have access to them.