Rare disease education in Europe and beyond: time to act

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Authors: Birute Tumiene 1, Harm Peters 2 3, Bela Melegh 4, Borut Peterlin 5, Algirdas Utkus 1 3, Natalja Fatkulina 6, György Pfliegler 7, Holm Graessner 8 9, Sanja Hermanns 8 9, Maurizio Scarpa 10, Jean-Yves Blay 11, Sharon Ashton 12, Lucy McKay 13, Gareth Baynam 14 15 16

Journal title: Orphanet Journal of Rare disease

Journal number: 19;17(1):441

Journal publisher: BMC

Published year: 2022

DOI identifier: 10.1186/s13023-022-02527-y