Regulatory Framework for Data Protection, Privacy and Ethical Issues

The deliverable will include the state-of-play of data protection, privacy and ethical issues related to the missing children investigation cycle, including the generation of templates of the informed consent forms and information sheet, as well as details on the incidental findings policy that will be employed. The deliverable will clarify how consent/assent will be ensured in case children and/or adults unable to give informed consent are involved, and provide details about the measures taken to prevent the risk of enhancing vulnerability/stigmatisation of individuals/groups. The deliverable will also contain the relevant report from the Ethics Advisory Board. This deliverable will address the Ethics Requirements 2, 3, 4, 5, 6, 7, 8, 9, 11 and 12 from the Ares(2017)4601286 Ethics Summary Report.