Recommendations from the IRDiRC Working Group on methodologies to assess the impact of diagnoses and therapies on rare disease patients

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Authors: Galliano Zanello; Chun-Hung Chan; David A. Pearce; IRDiRC Working Group

Journal title: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-10 (2022)

Journal number: 1

Journal publisher: BioMed Central

Published year: 2022

DOI identifier: 10.1186/s13023-022-02337-2

ISSN: 1750-1172