A Resource for Guiding Data Stewards to Make European Rare Disease Patient Registries FAIR

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Authors: Philip van Damme; Pablo Alarcón Moreno; César H. Bernabé; Alberto Cámara Ballesteros; Clémence M. A. Le Cornec; Bruna Dos Santos Vieira; K. Joeri van der Velde; Shuxin Zhang; Claudio Carta; Ronald Cornet; Peter A.C. ’t Hoen; Annika Jacobsen; Morris A. Swertz; Marco Roos; Nirupama Benis

Journal title: instname:Consejo Superior de Investigaciones Científicas (CSIC)

Journal number: 8

Journal publisher: Committee on Data for Science and Technology (CODATA) International Council for Science (ICSU)

Published year: 2023

DOI identifier: 10.5334/dsj-2023-012

ISSN: 1683-1470