Periodic Reporting for period 1 - IDEA4RC (Intelligent Ecosystem to improve the governance, the sharing and the re-use of health Data for Rare Cancers)

Rare cancers comprise more than 200 different tumours, 74% of which have an annual incidence rate below one case every 200,000 European citizens. Taken together rare cancers account for about 20%-25% of all new cancer diagnoses, nonetheless knowledge on rare cancers is scarce...