Obstacles and expectations of rare disease patients and their families in Türkiye: ISTisNA project survey results

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Authors: Ozden Hatirnaz Ng, Ilayda Sahin, Yucel Erbilgin, Ozkan Ozdemir, Emrah Yucesan, Nazli Erturk, Merve Yemenici, Ozlem Akgun Dogan, Sibel Aylin Ugur Iseri, Ilhan Satman, Yasemin Alanay, Ugur Ozbek

Journal title: Frontiers in Public Health

Journal number: 10

Journal publisher: Frontiers in Public Health

Published year: 2023

DOI identifier: 10.3389/fpubh.2022.1049349

ISSN: 2296-2565