Towards the international interoperability of clinical research networks for rare diseases: recommendations from the IRDiRC Task Force

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Authors: Rima Nabbout, Galliano Zanello, Dixie Baker, Lora Black, Isabella Brambilla, Orion J. Buske, Laurie S. Conklin, Elin Haf Davies, Daria Julkowska, Yeonju Kim, Thomas Klopstock, Harumasa Nakamura, Kim G. Nielsen, Anne R. Pariser, Jose Carlos Pastor, Maurizio Scarpa, Maureen Smith, Domenica Taruscio, Stephen Groft

Journal title: Orphanet Journal of Rare Diseases

Journal number: 18

Journal publisher: BioMed Central

Published year: 2023

DOI identifier: 10.1186/s13023-023-02650-4

ISSN: 1750-1172