First Ethics Report

After definition of the requirements (month 3) and the definition of the holistic data management approach (D6.1, month 6), and ethics review will be undertaken. This report will summarize the findings of the ethics analysis performed in Task 2.1, as well as the measures designed for ensuring compliance with the ethical standards of H2020, including informed consent procedures, measurements for preventing the risk of enhancing vulnerability/stigmatization of individuals/groups, incidental findings procedures, procedures for data collection, storage, retention and destruction and confirmation that these comply with national and EU legislation in cases where such procedures are identified as required. Copies of ethical approvals for the collection of personal data by the competent University Data Protection officer /National Data Protection authority (if required) and other relevant documents, by instance, informed consent Forms and Information Sheets, will be annexed. A further release of the report will be produced at the end of the project (Month 30) to report any updates that became necessary in the course of the project.