Integrative review

Task 1.4. An integrative review to identify how to measure the potential effects (including valid instruments but not only) and possible complications of palliative sedation in main refractory symptoms (M9-M18) This review will summarize the empirical or theoretical literature to provide a more comprehensive understanding of the question of how to evaluate the sedation procedures in palliative care patiens. This integrative review, thus, has the potential to inform the prospective study that the group will carry out in the next workpackage. Experts in qualitative methods of the University of Navarra will support the search a broad kind of articles with all methodologies in order to capture the context, processes and subjective elements of the topic. To listen the patients perspectives we will invite to participate in the analysis and discussion to the European Patient Forum, an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. A report on tools to measure different ways and instruments to measure the effects of palliative sedation will be produced and will be discussed in the consensus meeting (see task 1.5)