ERD

ERDERA | EUROPEAN RARE DISEASES RESEARCH ALLIANCE

01-09-2024

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31-08-2031

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

EJP RD | European Joint Programme on Rare Diseases

01-01-2019

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31-08-2024

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

c4c | conect4children (COllaborative Network for European Clinical Trials For Children)

01-05-2018

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30-04-2025

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

SCREEN4CARE | Shortening the path to rare disease diagnosis by using newborn genetic screening and digital technologies

01-10-2021

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30-09-2026

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

PARADIGM | Patients Active in Research and Dialogues for an Improved Generation of Medicines: Advancing meaningful patient engagement in the life cycle of medicines for better health outcomes.

01-03-2018

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30-11-2020

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

ERICA | European Rare dIsease research Coordination and support Action

01-03-2021

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28-02-2025

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

Solve-RD | Solving the unsolved Rare Diseases

01-01-2018

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31-03-2024

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

ADAPT-SMART | Accelerated Development of Appropriate Patient Therapies: a Sustainable, Multi-stakeholder Approach from Research to Treatment-outcomes - Sofia ref.: 115890

01-07-2015

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30-04-2018

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

FACILITATE | FrAmework for ClInicaL trIal participants daTA reutilization for a fully Transparent and Ethical ecosystem

01-01-2022

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31-12-2025

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

REMEDI4ALL | BUILDING A SUSTAINABLE EUROPEAN INNOVATION PLATFORM TO ENHANCE THE REPURPOSING OF MEDICINES FOR ALL

01-09-2022

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31-08-2027

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

AEGIS | Accelerated Early staGe drug diScovery

01-01-2016

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31-12-2019

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

MMM | Medicine Made to Measure.

01-10-2023

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30-09-2027

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

HTx | Next Generation Health Technology Assessment to support patient-centred, societally oriented, real-time decision-making on access and reimbursement for health technologies throughout Europe

01-01-2019

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30-06-2024

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

JOIN4ATMP | MAP, JOIN AND DRIVE EUROPEAN ACTIVITIES FOR ADVANCED THERAPY MEDICINAL PRODUCT DEVELOPMENT AND IMPLEMENTATION FOR PATIENT AND SOCIETY BENEFIT

01-01-2024

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31-12-2026

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

More-EUROPA | More Effectively Using Registries to suppOrt PAtient-centered Regulatory and HTA decision-making

01-01-2023

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31-12-2027

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

GCOF | A stepping stone approach towards the Genetics Clinic of the Future

01-01-2015

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30-06-2017

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Organisation EURORDIS - EUROPEAN ORGANISATION FOR RARE DISEASES ASSOCIATION

Projects overview

Selected filters:

ERDERA | EUROPEAN RARE DISEASES RESEARCH ALLIANCE

EJP RD | European Joint Programme on Rare Diseases

c4c | conect4children (COllaborative Network for European Clinical Trials For Children)

SCREEN4CARE | Shortening the path to rare disease diagnosis by using newborn genetic screening and digital technologies

PARADIGM | Patients Active in Research and Dialogues for an Improved Generation of Medicines: Advancing meaningful patient engagement in the life cycle of medicines for better health outcomes.

ERICA | European Rare dIsease research Coordination and support Action

Solve-RD | Solving the unsolved Rare Diseases

ADAPT-SMART | Accelerated Development of Appropriate Patient Therapies: a Sustainable, Multi-stakeholder Approach from Research to Treatment-outcomes - Sofia ref.: 115890

FACILITATE | FrAmework for ClInicaL trIal participants daTA reutilization for a fully Transparent and Ethical ecosystem

REMEDI4ALL | BUILDING A SUSTAINABLE EUROPEAN INNOVATION PLATFORM TO ENHANCE THE REPURPOSING OF MEDICINES FOR ALL

AEGIS | Accelerated Early staGe drug diScovery

MMM | Medicine Made to Measure.

HTx | Next Generation Health Technology Assessment to support patient-centred, societally oriented, real-time decision-making on access and reimbursement for health technologies throughout Europe

JOIN4ATMP | MAP, JOIN AND DRIVE EUROPEAN ACTIVITIES FOR ADVANCED THERAPY MEDICINAL PRODUCT DEVELOPMENT AND IMPLEMENTATION FOR PATIENT AND SOCIETY BENEFIT

More-EUROPA | More Effectively Using Registries to suppOrt PAtient-centered Regulatory and HTA decision-making

GCOF | A stepping stone approach towards the Genetics Clinic of the Future