White paper on patient perspectives with recommendations for novel approaches of collection, storage and distribution of clinical genomic data on rare and common diseases

Based on the results of that survey and together with a multistakeholder group, we will compose a white paper that evaluates the possible benefit/harm of different types of results to the study subjects, plan generic ways of giving such results supported with information available on biobank website and draft a role for GCOFs for a more individual approach to returning the results.