Document describing outcome of stakeholder-engagement workshop identifying potential policy options

Document on the exploration of relevant policy issues for data sharing emerged in the context of rare disease registries via background research, based on relevant European initiatives (e.g. BBMRI, GEN2PHEN, PACITA), input from the other WPs and participation of WP6 members in activities in the other WPs, predominantly WP2 and WP4. We will generate a list of policy issues that will serve as an initial framework to guide the other activities in WP6.