Report on health economic aspects of the GCOF

A summary report of Task 6.2, describing: - a framework to standardize and automate data extraction (in terms of collecting, storing and distributing data) for policy making around the GCOF; to enable efficient and cost-effective research in the field of genetics it is essential to link patient registries in hospitals and to automate data extraction.  standardized methods in research around health economic aspects of the GCOF; to enable more efficient decision-making. Which data should be collected, what are the outcome measures, what is the link between better diagnostics and treatment are essential questions to be answered.  how the economic, societal and political value for genomic data can be assessed (e.g. for reimbursement of care, or trading genomic data); one of the questions to be answered by many of the stakeholders is whether a genetic test has added value (e.g. for economy, for the clinic, or for society as a whole). These outcomes should be the result of extensive discussions with researchers in the clinic who have set up the research questions for innovative approaches.